Nice Announces Next Stages in Appraisal of Risdiplam / Evrysdi

28 August 2020

When we heard in April this year that NICE’s risdiplam appraisal was to be put on hold due to Covid-19, SMA UK, MDUK and TreatSMA, wrote jointly to NICE urging them to reinstate the process at the earliest possible time due to the great potential this treatment has for the SMA Community.

We were pleased to hear this week that the appraisal is again progressing.

NICE’s website states guidance on using the treatment in the NHS in England - including which groups this will cover - will be published on 21st July 2021. SMA UK will work with the other patient groups to represent community views on access. The patient groups' submissions to NICE will be made by 30th October 2020. They will be nominating patient and clinical experts to speak at the first committee meeting on 11th May 2021.