Response from NICE to the SMA Community re: NICE's Communications About Access to Nusinersen

10 July 2019

On 14th June, SMA UK, MDUK and TreatSMA wrote to NICE and NHS England raising our concerns about the way NICE / NHS England’s decisions had been communicated and the impact this was having on the SMA Community.

We made it clear that we want to be able to work with them positively and collaboratively on the next steps of the MAA.

Read our letter

Read NICE's response