Scroll down for a whole range of experiences and thoughts - from teenage reflections, to being a parent who has SMA, to hearing about animal companions. Our thanks to all our contributors.
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Tips and ideas for keeping entertained and positive if you’re having to socially-distance or isolate.
Sport, driving, travel to name a few of the experiences described here by children, young people, adults and families.
Living independently, working, travelling, looking back on life to date.
College, university, degrees and PhDs - some of the choices people have made.
Work experience, school, hobbies and life in general.
Equipment, education and spinal surgery are some of the topics discussed.
The journeys that have led to this new chapter of life.
Shared since 2011, parents whose babies didn't access drug treatment reflect on their experiences.
Families talk about their experiences of getting a diagnosis and caring for their child.
You can read families' experiences of grief and how they cope with bereavement, as well as people's personal tributes and memories of those they love.