Make Contact With Others
You may be an adult or young person* with SMA, a parent, or a grandparent of a someone who has SMA. You may be newly diagnosed, many years "down the line", or bereaved by SMA. We hope there is something for you here.
*If you are under 18 years old, you will need your parent / guardian's permission.
This Facebook group gives adults with SMA the chance to share questions and experiences on any part of life. You can find out more about the group and join here.
If you’re a teenager or young adult thinking about what to do next, or you’d like to hear how other young people have managed a particular challenge, you may find it helpful to have contact with others in our Young Adults Network.
In the Autumn months, and occasionally at other times in the year, we offer social opportunities to meet others affected by SMA. Every other year, we also run an Information & Support Weekend. You can read about previous and planned events here.
People often ask us "What do other people do?". We can email your question to the many people who are signed up to offer information, tips and advice.
There are many social media groups set up by and for people in the SMA Community. You can find contact details for some of them here.