SMA Voices

Our thanks to all who have shared their personal experiences.

If you would like to write for these pages, please do get in touch here.

Out and About and Leisure Time

Out and About and Leisure Time

Sport, driving, travel to name a few of the experiences described here by children, young people, adults and families.

Adult Reflections

Adult Reflections

Living independently, working, travelling, looking back on life to date.

Further Education

Further Education

College, university, degrees and PhDs - some of the choices people have made.

Animal Companions

Animal Companions

From assistance dogs to pampered pets, people share here what their furry friends and animal companions mean to them, and the role they play in their lives.

Teenage Reflections

Teenage Reflections

Work experience, school, hobbies and life in general.

Parents & Grandparents of Children who have SMA Type 2 or 3

Parents & Grandparents of Children who have SMA Type 2 or 3

Equipment, education and spinal surgery are some of the topics discussed.

Having SMA & Becoming a Parent

Having SMA & Becoming a Parent

The journeys that have led to this new chapter of life.

Speaking Up For SMA

Speaking Up For SMA

Adults Speak Up For SMA on issues that are important to them, such as in the media or at an information, social, or Parliamentary event.

Parents who have cared for their infants diagnosed with SMA Type 1

Parents who have cared for their infants diagnosed with SMA Type 1

Shared since 2011, parents whose babies didn't access drug treatment reflect on their experiences.

SMARD 1

SMARD 1

Families talk about their experiences of getting a diagnosis and caring for their child.