Community member Martyn talks to Portia about Ezra, now 4.5 years, who has SMA Type 1 and to Mark & Panna about Aadi, now 5.5 years, who has SMA Type 2.
Russ shares his experiences of granddaughter Georgie's diagnosis of SMA, and the journey the family have been on since.
Their relationship growing up and what things are like now.
What it's like growing up with a brother who has SMA.
Suzanne talks to her mum Margaret about what it was like for her.
Kym shares her experiences following receiving her son, Rayne's, diagnosis of SMA Type 2.
David shares his reflections here of the close relationship between his sons Chris (who has SMA Type 3) and Alex (who doesn’t have SMA) and what it was like for them while growing up.