Family Reflections

Family Journeys from Diagnosis to School (podcast & video Sept 21)

Family Journeys from Diagnosis to School (podcast & video Sept 21)

Community member Martyn talks to Portia about Ezra, now 4.5 years, who has SMA Type 1 and to Mark & Panna about Aadi, now 5.5 years, who has SMA Type 2.

Grandparent Russ (Oct 21)

Grandparent Russ (Oct 21)

Russ shares his experiences of granddaughter Georgie's diagnosis of SMA, and the journey the family have been on since.

Siblings: Jordanne and Shannon (podcast & video July 21)

Siblings: Jordanne and Shannon (podcast & video July 21)

Their relationship growing up and what things are like now.

Siblings: Chris and Alex (podcast & video July 21)

Siblings: Chris and Alex (podcast & video July 21)

What it's like growing up with a brother who has SMA.

Parent’s Perspective On Diagnosis 25 Years On (podcast & video June 21)

Parent’s Perspective On Diagnosis 25 Years On (podcast & video June 21)

Suzanne talks to her mum Margaret about what it was like for her.

Kym and Rayne (Oct 2019)

Kym and Rayne (Oct 2019)

Kym shares her experiences following receiving her son, Rayne's, diagnosis of SMA Type 2.

Chris and Alex (Aug 2019)

Chris and Alex (Aug 2019)

David shares his reflections here of the close relationship between his sons Chris (who has SMA Type 3) and Alex (who doesn’t have SMA) and what it was like for them while growing up.