Our Staff

Support Services

Our team members come from a variety of health, education and social care professional backgrounds. Between them they have extensive experience of working with people affected by SMA and of other disability information, support and advocacy work. We have 4.5 full time equivalent (FTE) staff who between them provide phone and email support, keep our website and information guides up to date and coordinate our shared experiences services. Team members with an ‘Outreach Worker’ brief make home visits all over the country and also keep in touch with people by phone and email.

Fundraising, Management and Administration

We have a Managing Director, Support Services Manager and Fundraising Manager all working full-time.  In addition, we have a Communications Coordinator, Marketing Officer, Fundraising Administrator, Events Manager and Supporter Care Officer working part-time. Together, and with your support, we work hard to keep external communications flowing, organise events for the community and bring in the charitable income needed to run our services and support research-related initiatives.

We are accountable through our Managing Director to the Board of Trustees.