From care assessments to getting a new wheelchair, to adaptations, to work and holidays - there's plenty of challenges and here’s a way to gather and share ideas. This network is all about meeting with other adults via the private Facebook group and / or the quarterly video chats.
Facilitated by Martyn Sibley, who has SMA, the group runs independently but has regular contact with SMA UK, working together in support of the SMA Community.
“To learn and grow from each other. To share the ups and downs where others understand and give support and courage. Love this group❤ ”
“A safe place to ask for and give advice. A community who have knowledge and understanding that you can rarely find in day to day life.”
If you don’t want to join the Network, you can still ask members for their tips and ideas: