Sadly, families with a baby with SMA Type 1 or SMARD1 may face bereavement. These information sheets talk about this and the support that is available.
If You Are Bereaved
We hope the information on the Support if you are Bereaved page (in the Living With SMA section of our website) and the reflections of individuals and families talking about how they cope with their grief in 'Family Experiences of Bereavement' will be of some support during such a sad time. Our Outreach Service is also there for you, even if you haven't been in contact with us before now.