Citizens' Jury on Genome Editing: Recruiting Now
15 June 2022
Genetic Alliance UK is looking for people with a lived experience of genetic conditions (someone who is directly affected by a genetic condition, a carrier of a genetic condition, a parent, carer, partner or family member of someone living with a genetic condition) to take part in a UK Citizens' Jury on Genome Editing of Human Embryos.
The project is being organised by Wellcome Connecting Science and Involve, and is an opportunity for people to learn about genome editing from experts, to discuss and deliberate answers to questions around the societal impact of genome editing of human embryos, and develop recommendations for policy makers going forward.
Who can take part?
They are looking for a diverse jury of 24 members representing different lived experiences of genetic conditions from all across the UK with varying levels of background knowledge about genetics.
If you answer yes to some of the following questions, they'd like to hear from you:
- Do you want to learn about genome editing of embryos?
- Do you have an open mind about genome editing?
- Are you affected by a genetic condition, either directly, as a parent, carer or family member?
- Do you or the person you care for have experience of NHS genetic clinics?
- Have you ever used or considered using preimplantation genetic testing for monogenic disorders (PGT-M), also known as preimplantation genetic diagnosis (PGD)?
- Do you feel OK about your views being filmed?
Selected participants will be invited to attend a four day residential workshop (13-16 September) at the Wellcome Genome Campus in Cambridgeshire; all costs will be covered and you will receive an £800 thank you gift for taking part.
If you're interested in taking part, the deadline to apply is Wednesday 22 June.