EURODIS Survey to Understand how the COVID-19 Pandemic is Affecting those who have a Rare Disease, and their Carers

12 May 2020

This survey will help EURORDIS-Rare Diseases Europe, a non-profit and non-governmental alliance of 900+ patient organisations, to understand your experience of the COVID-19 pandemic.

The survey will only take around 15 minutes to answer.

They will share the overall results of the survey with you and communicate them (without communicating your individual responses) to decision-makers. The goal is to voice the specific needs of rare disease patients’ in relation to the COVID-19 pandemic and to propose practical solutions to ensure rare diseases patients are take into account when handling the pandemic.

Take the survey