Information and Support over the Christmas Break

14 December 2020

Our office will be closed from 3.30pm on Wednesday 23rd December 2020. We re-open on Monday 4th January 2021 at 9.00am.

We are sorry we are unable to stay open for phone or email enquiries during this time. We have a very small support services staff team and it is not possible for us to provide cover.

We hope you will be able to find helpful information on our information and support website pages, and on the Living With SMA section of our website.

If you have an enquiry or are looking for support, please email us on or phone us on 01789 267 520 and leave a message. We will get back to you as soon as we can once the office has re-opened.

Please contact your medical team if you have any urgent enquiries. 

Organisations offering support over the Christmas period:

  • NHS Volunteer Responders: 0808 196 3646 (8am to 8pm, 7 days a week).
  • Cruse Bereavement Care: helpline hours over Christmas are here.
  • Mind (mental health charity): helpline hours over Christmas are here.
  • Turn2Us also has some information and links to further resources that may be helpful - read more.

We'd like to thank each and every one of you in SMA Community who has supported us as an organisation throughout this very difficult year. It's much appreciated and will allow us to keep continuing our important work supporting families and individuals affected by Spinal Muscular Atrophy.