Information and Support over the Christmas Break

11 December 2019

Our office is closed from 1pm on Friday 20th December 2019. We re-open on Thursday 2nd January 2020 at 9.00am.

We are sorry we are unable to stay open for phone or email enquiries during this time. We have a very small support services staff team and it is not possible for us to provide cover.

We hope you will be able to find helpful information on our information and support website pages, and on the Living With SMA section of our website.

If you have an enquiry or are looking for support, please email us on or phone us on 01789 267 520 and leave a message. We will get back to you as soon as we can once the office has re-opened.

Please contact your medical team if you have any urgent enquiries. 

Organisations offering support over the Christmas period:

  • Muscular Dystrophy UK: the office will be closed over Christmas but there is a freephone helpline number you can call in an emergency: 
    0800 652 6352
  • Cruse Bereavement Care: helpline hours over Christmas are here.
  • Mind (mental health charity): helpline hours over Christmas are here.