New Survey: Being a Teenager With SMA

21 October 2021

Are you aged 13-18? Do you have a diagnosis of SMA? Jordanne would love to hear from you!

Jordanne is an adult with SMA Type 2. She's currently studying a master's degree in clinicial psychology and is interested to hear more about how SMA affects the emotions and quality of life of people aged 13-18 years. The lived experience of teenagers who have SMA has not yet been studied by psychologists so this project will provide important insight.

Hear more from Jordanne in the video below:

The survey should take around 10 minutes to complete. If you decide at any time that you want to stop, you can just close the webpage.

If you have any questions or concerns, please email Jordanne: 

Before taking part, you will need to give your consent. If you are younger than 18 years old, a parent/guardian will have to consent too - this is through the survey link. 

Further information

Take the survey