NHS England and NHS Improvement: UK Framework Action Plan Discussion

09 July 2021

Since the publishing of The UK Rare Disease Framework on 9th January 2021, NHS England and NHS Improvement have been busy developing an Action Plan.

Now, they and Findacure invite you to share your thoughts on the UK Rare Disease Framework Action Plan in a two-hour session on Tuesday 20th July

The event is for patient group representatives, rare disease patients and health care professionals. They want to hear from you on which improvements need to be made to rare disease care, treatment and research over the next five years.

Find out more and register to attend the event