Latest News: Information
01 November 2018 / Posted in: Information, Support
The charity Turn2Us have written an article explaining how people claiming Universal Credit can get help through Universal Support which enables them to make a claim and manage ongoing payments.
24 October 2018 / Posted in: Information
An A-Level student is running this survey to find out to what extent physiotherapy improves the quality of life for those with SMA compared to other care pathways.
23 October 2018 / Posted in: Information
We support this campaign which shows there is compelling evidence that the services and support that children and young people rely on are at breaking point.
22 October 2018 / Posted in: Information
Project Move is an exciting joint venture between Alder Hey and The University of Liverpool looking at redesigning and modernising children’s powered wheelchairs. Find out how you could get involved by attending their event.
09 October 2018 / Posted in: Information, Treatments & Research, Support
We are now starting to work out priorities for the new organisation, including how and when the funds we hope to raise should be spent. We are very keen to hear the views of as many people in the SMA Community as possible. The survey closes on 11th November.
08 October 2018 / Posted in: Information, Support
The Change 100 scheme was launched in 2014 to enable young disabled people to obtain useful work experience and mentoring. Applications are now open until 16th January 2019.
28 September 2018 / Posted in: Information, Support
A new smartphone app, currently being trialled by four train companies, will be rolled out across Britain in Autumn next year to help with passenger assistance, with the aim of making it easier for customers to book help at stations and get a more consistent and reliable service.
27 September 2018 / Posted in: Information
The Lords Economic Affairs Committee has launched its inquiry into the social care system in England and invites written contributions from anyone.
26 September 2018 / Posted in: Information, Support
Taking place between 9th and 15th October, this awareness week is a collaboration between 60+ charities across the UK to raise awareness about the issues affecting those who have experienced pregnancy loss or death of a baby in the UK.
21 September 2018 / Posted in: Information, Support
The charity Contact for Families of Disabled Children say that they have been inundated with calls about issues surrounding school transport. There are a number of support resources available about this on their website, along with an upcoming live Facebook Q&A, and Midlands workshops.