SMA Europe Launches Survey: "Help Us Advocate For Our Common Needs"
05 January 2022
The SMA Community still faces significant unmet therapeutic and care needs, even after the approval of SMA therapies. In order to advocate for better access to treatment and care, we need to gain an in-depth understanding of the experiences people living with SMA have, with regards to nutrition, physiotherapy and treatment.
This is why SMA Europe has launched this new pan-European survey, as part of their European Patient Expectation Survey Series (EUPESMA).
The survey takes around 30 – 45 minutes to complete and the whole questionnaire must be completed to be considered for evaluation.
It's available in 20 different languages and is recommended you complete it on larger screens and not on mobiles.