Study with Caregivers of People with SMA

23 November 2021

Market researcher Evolve is running this study on behalf of Novartis Gene Therapies.

What they say:

"We are currently recruiting caregivers of people with Spinal Muscular Atrophy (SMA) Types 1, 2 or 3  for a Spinal Muscular Atrophy (SMA) study on behalf of Novartis Gene Therapies.

We are interested in understanding more about the different medications, devices, and medical appointments that people with SMA are using. The goal of this study is to collect data regarding the use of resources linked to the management of SMA from the perspective of caregivers, as well as time spent caring for patients and any financial impact.

This is an online survey that will last about 30-40 minutes and you will be paid an incentive of £50 for your time and contribution.

Please if you are interested to participate, can you complete for us the few screening questions through this link. We shall get in contact with you, if you are eligible for the research. 

Alternatively, you can contact Nadine at"