Survey Exploring Access to the Standards of Care for People who have SMA in the UK
10 May 2021
The John Walton Muscular Dystrophy Research Centre in Newcastle invites one respondent for each child / adult who has SMA to take part in gathering this important information that will help guide future practice. Sharing your experiences will inform care providers and highlight areas for possible improvement, and will also help to highlight any potential differences in regions, age groups and SMA Types. In addition, it will help to understand the opportunities to optimise the effect of new treatments that are becoming available.
You can find out more and take the survey, if you haven't already done so, here.