Clinicians and SMA Charities Protest NICE Decision

21 August 2018

Clinicians and SMA Charities yesterday expressed the need for urgent action given our grave concerns about: the lengthy process for the NHS England and NICE appraisal of nusinersen; the lack of clarity of the appropriate path for NICE to adopt for its appraisal; the implications of these choices for the well-being and clinical outcomes of people with SMA. 

You can read the letter sent to NICE, NHS England and the National Institute for Health Research, by clicking on the link below:

Download the letter