Your Views On Access To Rare Disease Medicines
04 April 2019
Genetic Alliance UK are working on a policy project to improve access to medicines for rare diseases, called Resetting the Model.
To ensure this vision comes from the whole rare disease community, they have launched a survey to understand your views on how decisions should be made around access to rare disease medicines. They will be releasing another survey at a later date, where you will be given the opportunity to expand upon your views (more information about the subsequent survey will be released soon).
The deadline of this survey is Friday 19th April.