Connect With Others
Browse here for different ways to connect with others in the SMA Community. Whatever you choose, keep safe and well - our guidelines are here to help.
Martyn Sibley and other young adults who have SMA, host social events and sessions on a variety of topics in this virtual community space.
Everyone on the network either has SMA themselves, or is a parent, partner, grandparent or professional, keen to share what's worked for them, their tips and ideas.
A Facebook group where adults who have SMA share questions and experiences on all aspects of life.
A network of young adults who're willing to talk about their experiences and share their tips and ideas with teenagers and / or parents who may have questions. They're very much involved with Community Connections and 'Speak Up For SMA'.
If you're wondering about an aspect of life with SMA, this area of our website offers useful information and ideas, many of which come from the SMA Community.
You can find a whole range of experiences and thoughts here - from teenage reflections, to being a parent who has SMA, to hearing about animal companions.
Currently on hold due to Covid-19, you can find out about virtual ways to connect with others in the Community, and read about some of the previous information and social events we've held.
There are many groups and services set up by and for people in the SMA Community. You can find contact details for some of them here.
Get in touch for tips and ideas from the SMA Community, or join up to one the Community Networks. You can also read our volunteering and network guidelines.