Consultations, Campaigns, Advocacy & Awareness
We may be working on a topic ourselves or have been asked to let the SMA Community know about a consultation, campaign, survey or petition that may be of interest. See what's active here.
If you have one, or would like to draw our attention to one that you think would be of interest to the SMA Community, please contact us.
You can find: notices for awareness events coming up; reports on previous years events, such as UK SMA Awareness Day and Rare Disease Day, and disability awareness-raising resources.
We're always keen for the voices of people affected by SMA to be heard directly by researchers, policy and decision makers. If you're interested in opportunities to speak up and talk face-to-face about your experiences, find out more here.