Consultations, Campaigns, Advocacy & Awareness

Access to Nusinersen

Access to Nusinersen

For the latest information on access, how you can help us with our work on this, and any petitions that we have been asked to post.

Respond to a Consultation, Campaign, Survey or Petition

Respond to a Consultation, Campaign, Survey or Petition

We may be working on a topic ourselves or have been asked to let the SMA Community know about a consultation, campaign, survey or petition that may be of interest. See what's active here.

Let us know about a Consultation, Campaign, Survey or Petition

Let us know about a Consultation, Campaign, Survey or Petition

If you have one, or would like to draw our attention to one that you think would be of interest to the SMA Community, please contact us.

Awareness Events and Resources

Awareness Events and Resources

You can find: notices for awareness events coming up; reports on previous years events, such as UK SMA Awareness Day and Rare Disease Day, and disability awareness-raising resources.

Speak Up For SMA

Speak Up For SMA

We're always keen for the voices of people affected by SMA to be heard directly by researchers, policy and decision makers. If you're interested in opportunities to speak up and talk face-to-face about your experiences, find out more here.