Health & Wellbeing Series 1 -
Leading health professionals talk with Martyn Sibley about the impact of Covid-19 on access to nusinersen treatment for children and adults - virtual assessments, coming to clinic and other related questions - in these three recordings of webinars held betweenJuly and August. To see a list of our upcoming webinars, click here.
An update on access to nusinersen treatment for adults and the chance to ask questions
Martyn is joined on the panel by leading clinicians (Ros Quinlivan and Chiara Marini-Bettolo), leading physiotherapists (Robert Muni-Lofra and Anna Mayhew) and the Head of Highly Specialised Commissioning at NHS England, Fiona Marley.
(Duration: 1 hour)
Virtual assessments for children who are able to sit and are / will be receiving nusinersen treatment.
Felicity Vann (Senior Specialist Paediatric Physiotherapist) and Dr Elizabeth Wraige (Consultant Paediatric Neurologist) talked about this and answered questions about coming to clinic.
(Duration: 34 mins, 39 secs)
Virtual assessments for children who are unable to sit and are / will be receiving nusinersen treatment.
Professor Francesco Muntoni and consultant physiotherapist, Marion Main, talked about this and answered questions about coming to clinic.
(Duration: 44 minutes)