How We Can Support You

For any enquiries, please: email support services or 
phone the office: 01789 267520 

(lines are open Mon-Thurs, 9am-3:30pm, Friday, 9am-1pm)

The Support & Outreach Service

The Support & Outreach Service

For families with children and young people who have SMA, adults who have SMA, and those bereaved by SMA, by email, phone, text and home-visits.

Multisensory Toy Packs

Multisensory Toy Packs

Free of charge in the UK for infants up to 12 months of age. If your child is older, we may be able to help you access other suitable toys.

Emergency Health Plan App

Emergency Health Plan App

Bring medical professionals up-to-speed accurately and quickly by using our EHP app.

Living With SMA

Living With SMA

If you're wondering about an aspect of life with SMA, this area of our website offers useful information and ideas.

Ask A Question

Ask A Question

People often ask "What do other people do?". We can email your question to the many people who are signed up to offer information, tips and advice.

Make Contact With Others

Make Contact With Others

Meet others at our events or via a virtual network. Find out about SMA UK Events and which networks are on offer.

Read People's Stories

Read People's Stories

People describe their very personal stories and talk about how they’ve tackled challenges they’ve faced.

Bereavement

Bereavement

Developments in research and the possibility of treatments has brought great hope to many, but the most severe forms of SMA can still be life-threatening.

Information Publications

Information Publications

Find out more about what we produce, our resources for parents and teachers, how you can keep up-to-date.

Resources for Professionals

Resources for Professionals

For free resources and services to health, education and social care professionals.