How Your Money Helps
The video below was filmed at our Information, Support and Social weekend in April 2018 and includes reflections from some of the families affected by SMA.
We are grateful to Lotteries who fund 70% of the cost of this service. With this and your donations, we can support individuals and families affected by SMA who live in the UK.
Our information sheets and Route Maps give accurate, evidence-based, reliable and up-to-date information. Our information sheets/booklets are free to download and can be requested as hard copies.
Our Multisensory Toy Packs are available free of charge for babies in the UK diagnosed with early onset SMA Type 1 or rarer forms of SMA.
SMA Support UK and many other organisations offer a range of information and social opportunities that you may enjoy and find helpful.
These pages give all the latest updates in the world of treatments and research, including the latest on the treatment nusinersen.
Promising treatments for SMA are being developed which need to be tested in clinical trials. It can sometimes take years to find enough people. We help fund the Patient Registry which can speed this up.