Information

Following a request from a member of the SMA Community, we added our support to this open letter from Disability Rights UK to the Government requesting urgent action to: protect the lives of disabled people in the event of fire; prevent disabled leaseholders being forced to leave adapted homes; ensure that disabled leaseholders are not impacted by the costs of remedial safety works.

Organised by environmental non-profit organisation City to Sea, this online event is taking place on Friday 28th May (Menstrual Health Day). The panel will be discussing periods, menstrual education and period products, through the lens of disability, impairments and conditions.

In this episode - 'Adult Onset SMA' - SMA UK Host Martyn Sibley chats with Peter, who shares his personal journey to a diagnosis of SMA Type 4 in adulthood. Talking about how this ‘Adult Onset’ form of the condition has changed his life, Peter describes some of the challenges he’s faced and overcome and how he’s adapted to living with SMA.

The John Walton Muscular Dystrophy Research Centre in Newcastle invites one respondent for each child / adult who has SMA to take part in gathering this important information that will help guide future practice.

This week (10th - 16th) is Mental Health Awareness Week and this year's theme is 'Nature'. Find out more about this, as well as how SMA UK can help with providing information and support.

Following the UK’s exit from the E.U on the 1st January 2021, we have updated our Privacy Policy to reflect the changes to the GDPR (General Data Protection Act).