Information

This survey is designed to gather the experiences and views of parents / carers of children (aged 0-25 years) who have a life-limiting condition, in relation to how COVID-19 is affecting them.

The University of Plymouth has launched this survey as it's hoped the results will advance understanding of how these extraordinary times are affecting parents' thinking about, and perception of, access to services for children when they are sick or unwell.

A healthcare market research company working for a research client and pharmaceutical company wants to understand patient and caregiver journeys and any treatment routines. Participants will be paid £35 for each completed survey, with 10% donated to one of the company's registered charities. Registrations of interest close 29th May.

If so, please consider sharing your experiences by completing an online survey led by a specialist team at The National Hospital for Neurology and University College London. Survey closes 26th July.

A collaboration of international researchers, including researchers from University College London, are interested in how the current coronavirus pandemic is affecting disabled people and their families.

The goal is to voice the specific needs of rare disease patients’ in relation to the COVID-19 pandemic and to propose practical solutions to ensure rare diseases patients are take into account when handling the pandemic.