Information

June is SANDS awareness month. 2019's theme is ‘Finding Your Way’ after pregnancy and baby loss and seeking support in a way that is right for anyone needing it, with a particular focus on support for men and helping them find a way through grief. Find out more here including how to support the campaign.

Today sees the launch of 'Give it Back' - a new campaign from the Disabled Children's Partnership to encourage the government to fill the £434million gap in social care funding for disabled children in England through the upcoming Spending Review.

This survey is designed to capture information on service user experience in the Greater Manchester area of accessing and using a wheelchair (manual, battery powered or electric) over the last 5 years, and to identify both user and carer priorities. Survey closes: 28th June.

The NCB and British Academy want to find out what children and young people aged 11 to 18 think and feel about Childhood. They want to find out how the decisions that governments make affect children and young people’s lives as they are growing up.

This research is being conducted by a third year Biomedical Science undergraduate student at the University of Warwick. It's exploring views about newborn screening for SMA and Spinraza being recently approved for use on the NHS in the UK. Survey closes 4th June.

This week is Mental Health Awareness Week. Read Rare Disease UK's report from 2018 about mental health and the impact of living with a rare disease, and find out more about how we may be able to help with emotional support.