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The John Walton Muscular Dystrophy Research Centre in Newcastle invites one respondent for each child / adult who has SMA to take part in gathering this important information that will help guide future practice.

The Step-Free Access Campaign, set up by Ian Cook, is about petitioning for step-free access at all railway stations, and on trains, as so many are still inaccessible for disabled people. Add your voice to the campaign.

Many parents of children with serious health needs have concerns and unanswered questions about their children returning to school in September. WellChild have organised an online Q&A, on 20th August, with a panel of experts from Department of Education, law, health and education to help answer some of these burning questions.

Researchers at University College London are looking for participants for a study which looks at how care of people who have rare conditions is coordinated in the UK, and how patients and healthcare professionals who treat rare conditions would like them to be coordinated.

Motability's 2020 One Big Day events have had to be cancelled due to Covid-19. However, on 10th September, they are hosting a One Big Day Online event through their Facebook page.

As part of Community Connections, leading health professionals talked with Martyn Sibley about the impact of Covid-19 on access to nusinersen treatment for children and adults, in three webinars held between July and August. You can now watch them on our website.