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Thank you to everyone who completed this survey. Read more about how they will use the data, including writing a report to share with UK Health Technology Agencies.

Due to the escalation of COVID-19 coronavirus, we have taken the difficult decision to rearrange this event to Sunday 25th October. We hope to go ahead with our other planned events which are scheduled to take place later in the year.

This study is looking for a limited number of adults and parents / caregivers of teenagers or children to complete a 60-minute online survey. If you are eligible and fully complete the study, you will receive £100 compensation for your time.

Muscular Dystrophy UK have launched a report which highlights the problems that people living with a muscle-wasting condition are experiencing with the benefits application, assessment and appeals process. They are calling on the Government to take action to address the failings of the benefits system and are asking you to share their report with your MP.

As of January 2020, £500,000 of the £2 million fund provided by the Department of Health and Social Care has now been allocated for 16 new Changing Places toilets being installed at hospitals. The rest of the fund is open to new applications from NHS Hospital Trusts in England.

Public Health England (PHE) Digital is conducting this research and is seeking volunteers to provide feedback. Those who take part will receive a £50 voucher to thank them for their time.