Living With SMA: Maylan's Story

Dan Perez is a photographer living in the US. He has done work documenting the VACC Camp - a free week-long overnight camp hosted by Nicklaus Children’s Hospital in Miami for ventilation assisted children and their families.

He met Maylan, who has SMA, when he first documented the camp back in 2011 (the camp’s 25th year). He's returned back to the camp every year since 2011, and decided this year to work with Maylan to create a series of beautiful photographs (along with her words) to help further outline what living with SMA means to her. It was published during August 2021, SMA Awareness Month.

See Dan's photographs and read Maylan's story through the links below:

Part 1

Part 2

First published: 26th August 2021