Meet Our Community Connections Team
Emma is a writer, blogger, activist, public speaker and a law graduate, to name just a few things. She has previously worked for Muscular Dystrophy UK, is a Trustee for the Disabilty Law Service and is currently Policy Advisor for Scope.
Jack is 27 years old and has SMA Type 2. He's been part of the SMA UK community since he was a young child, regularly going to the annual Conference with hisfamily back when it was the Jennifer Trust. He's from Manchester and has just recently returned to the North-West, where he's going through the exciting process of purchasing and adapting his first home. Jack studied Modern Languages at St Andrews University and spent a year of hisdegree living and working in Germany. Since then, he has been working for Santander Bank and is halfway through a Master’s degree in translation at Manchester University. Jack says it's been great to be part of the Community Connections project so far, getting the chance to reach out to so many people in the SMA community in these difficult times, and learn from people’s shared experiences.
Jordanne is 23 and she has SMA Type 2. She started full-time work as a civil servant this year and is casually working towards a Master's degree in Clinical Psychology. In her free time, Jordanne enjoys driving to explore new places, meeting up with friends and going out for food! She loves being a part of SMA UK Community Connections and really loves meeting new people at our socials - she hopes to see more of you soon!
Co founder / CEO, Purple Goat Agency and Disability Horizons, Martyn envisions a fully accessible and inclusive world. He believes digital storytelling holds the power in achieving that vision. Having grown up with Spinal Muscular Atrophy, achieved a master's in marketing, and worked for a large Non-Governmental Organisation (NGO) for inclusion of disabled people; social enterprise became his focus. In starting a lifestyle blog, co founding Disability Horizons, Accomable and Purple Goat lots of sustainable social impact has resulted. Martynsibley.com lead to mainstream media appearances, public speaking to thousands of people, and the opportunity to travel the world. Which inspired the memoir Everything is Possible. Disability Horizons is a community magazine by disabled people for disabled people. Accomable supported disabled travellers and was acquired by Airbnb. Now Purple Goat is an influencer marketing agency connecting brands to the 1.3bn disabled people in the world.
“Dream big, understand your barriers, plan the way forward, be flexible, keep going and always have fun. Everything truly is possible when you believe.”
Josh graduated from the University of West England with a degree in Information Technology Management for Business. He has since worked for Hewlett Packard Enterprise, DXC Technology, and is now the founder and Director of Able Move Ltd, the business behind the easyTravelseatTM.
Mia is 18-years-old and has just started her first year studying Psychological and Behavioural Sciences at the University of Cambridge. Music and art are really important to Mia, and she loves being around people and having new experiences. One of her biggest life goals is to go travelling one day and visit places such as Brazil, Vietnam, India and Thailand.
Suzanne is a 28-year-old with SMA type II from Northern Ireland. She is currently working towards the completion of her Ph.D at Ulster University. Suzanne has a keen interest in Mental Health research and hopes to pursue her Ph.D research findings examining Resilience in the context of family carers in her future career. With a wedding on the horizon, Suzanne and her husband to-be Colin are busy preparing and planning for their special day in June 2021. Suzanne and Colin share a love of dogs and enjoy pampering their much loved Greyhound, Peggy.