Membership, Trustees & Governance

We are a registered with the Charities Commission as a membership organisation.


Members are people who are interested in how SMA UK is run and who may want to contribute their ideas about how we can best meet the needs of people in the SMA Community.

To be a member you must be 18 or over and live in the UK. You don’t have to have SMA or use our information and support services. You can join individually or as a household. Membership is free.

Members receive a copy of our Annual Report and minutes of our Annual General Meeting. They are invited to vote when we elect new Trustees (see below) and can decide to stand for election themselves.

If you / other family members in your household wish to join, please download our leaflet and fill in the form. You can either print and post it to us (address supplied) or you can take a photo / scan it and email it to


Our Trustees represent the membership and are responsible for governing the charity - making sure we are doing our best to respond to the needs of people in the SMA community.

Who they are now

Their roles and responsibilities

If you have read about the role of a Trustee and are interested in volunteering, please contact Support Services Manager, Liz Ryburn, on 01789 267520 or email