Our Story

From the Jennifer Trust to SMA UK

From the Jennifer Trust to SMA UK

We map out the milestones there have been in the world of SMA and how the charity has followed its founder Anita Macaulay’s mission.

1985: The Jennifer Trust

1985: The Jennifer Trust

Anita Macaulay’s baby, Jennifer, died aged 7 months from SMA Type 1. At that time, there was no research taking place and no organisations offering support. At Jennifer's funeral, Anita vowed to change this.

2003: The SMA Trust

2003: The SMA Trust

The SMA Trust was founded in 2003 by two SMA families with the ambitious goal to change the horizons of those with SMA - to help find a therapy for SMA. Find out more about the charity that went on to merge with SMA Support UK, to form what is now SMA UK.

2013: The Jennifer Trust becomes SMA Support UK

2013: The Jennifer Trust becomes SMA Support UK

After much thought and consultation, The Jennifer Trust changed both its name and logo.

2018: SMA Support UK and The SMA Trust merge

2018: SMA Support UK and The SMA Trust merge

In September 2018, the two charities merged to become Spinal Muscular Atrophy UK, adopting its new logo and brand.