Anita Macaulay’s baby, Jennifer, died aged 7 months from SMA Type 1. At that time, there was no research taking place and no organisations offering support. At Jennifer's funeral, Anita vowed to change this.
This page is currently under development.
After much thought and consultation, The Jennifer Trust changed both its name and logo.
In September 2018, the two charities merged to become Spinal Muscular Atrophy UK, adopting its new logo and brand.