Our Story

1985: The Jennifer Trust

1985: The Jennifer Trust

Anita Macaulay’s baby, Jennifer, died aged 7 months from SMA Type 1. At that time, there was no research taking place and no organisations offering support. At Jennifer's funeral, Anita vowed to change this.

2003: The SMA Trust

2003: The SMA Trust

This page is currently under development.

2013: The Jennifer Trust becomes SMA Support UK

2013: The Jennifer Trust becomes SMA Support UK

After much thought and consultation, The Jennifer Trust changed both its name and logo.

2018: SMA Support UK and The SMA Trust merge

2018: SMA Support UK and The SMA Trust merge

In September 2018, the two charities merged to become Spinal Muscular Atrophy UK, adopting its new logo and brand.