Outreach & Other Services

For any enquiries, please: email support services or 
phone the office: 01789 267520 

(lines are open Mon-Thurs, 9am-3:30pm, Friday, 9am-1pm)

The Support & Outreach Service

The Support & Outreach Service

For families with children and young people who have SMA, adults who have SMA, and those bereaved by SMA, by email, phone, text and home-visits.

Multisensory Toy Packs

Multisensory Toy Packs

Free of charge in the UK for infants up to 12 months of age. If your child is older, we may be able to help you access other suitable toys.

Living With SMA

Living With SMA

If you're wondering about an aspect of life with SMA, this area of our website offers useful information and ideas.

Information Publications

Information Publications

Find out more about what we produce; our resources for parents and teachers; how you can keep up-to-date.

Community Voices

Community Voices

You can find a whole range of experiences and thoughts here - from teenage reflections, to being a parent who has SMA, to hearing about animal companions.

Emergency Health Plan App

Emergency Health Plan App

Bring medical professionals up-to-speed accurately and quickly by using our EHP app.

Bereavement

Bereavement

Developments in research and the possibility of treatments has brought great hope to many, but the most severe forms of SMA can still be life-threatening.

Resources for Professionals

Resources for Professionals

For free resources and services to health, education and social care professionals.

Connect with the Community

Connect with the Community

Find out the different ways to connect with others in the SMA Community.