Outreach & Other Support

For any enquiries, please: contact our Support & Outreach Team or phone the office: 01789 267520 

(lines are open Mon-Thurs, 8.30am-4pm, Friday, 9am-1pm)

‚ÄčIf you’re a young person under 18 years of age looking for support and outreach, please contact us here.

The Support & Outreach Service

The Support & Outreach Service

Emotional support, practical advice and guidance for anyone affected by SMA. We can talk through questions and options and support you, for example to present your case for health, education and social care services.

Information & Support for Young People 18+

Information & Support for Young People 18+

If you have SMA and recently turned 18 / are turning 18 soon, take a look at the opportunities and services we offer to see if they're of interest to you.

Multisensory Toy Packs

Multisensory Toy Packs

Free of charge in the UK for infants up to 12 months of age. If your child is older, we may be able to help you access other suitable toys.

Living With SMA

Living With SMA

If you're wondering about an aspect of life with SMA, this area of our website offers useful information and ideas.

Coping with Covid-19: Advice, Tips & Guidance

Coping with Covid-19: Advice, Tips & Guidance

Thank you to all who contributed to what was a whole website section of advice, tips and guidance. The following links may still be useful.

Information Publications

Information Publications

Find out more about what we produce; our resources for parents and teachers; how you can keep up-to-date.

Community Voices

Community Voices

You can find a whole range of experiences and thoughts here - from teenage reflections, to being a parent who has SMA, to hearing about animal companions.

Bereavement

Bereavement

Developments in research and the possibility of treatments has brought great hope to many, but the most severe forms of SMA can still be life-threatening.

Resources for Professionals

Resources for Professionals

For free resources and services to health, education and social care professionals.

Connect with the Community

Connect with the Community

Find out the different ways to connect with others in the SMA Community.