Parents & Grandparents of Children who have SMA Type 2 or 3
Kym shares her experiences following receiving her son, Rayne's, diagnosis of SMA Type 2.
SMA UK Trustee and parent, Hassan, has written this report following the Cure SMA 2019 Conference.
David shares his reflections here of the close relationship between his sons Chris (who has SMA Type 3) and Alex (who doesn’t have SMA) and what it was like for them while growing up.
Elsie will be receiving a Wizzybug in January. Her parents talk here about how it will increase Elsie's independence.
Ben Morris, who has SMA Type 2, and his dad, Doug, went to Switzerland to talk to scientists and researchers about the impact SMA has on their lives.
Moving to secondary school - how to make it work well.
Mary and Paul's grandson Karl has SMA Type 2
Martin was 11 when he joined the Trophos Clinical Trial
A parent's perspective.
Bobby has SMA Type 3. His mum, Ally, shares the story of their SMA journey here.