Parents & Grandparents of Children who have SMA Type 2 or 3
Kym and Rayne
Kym shares her experiences following receiving her son, Rayne's, diagnosis of SMA Type 2.
Cure SMA 2019 Report from Hassan Sobati
SMA UK Trustee and parent, Hassan, has written this report following the Cure SMA 2019 Conference.
Chris and Alex
David shares his reflections here of the close relationship between his sons Chris (who has SMA Type 3) and Alex (who doesn’t have SMA) and what it was like for them while growing up.
Elsie And Her Wizzybug
Elsie will be receiving a Wizzybug in January. Her parents talk here about how it will increase Elsie's independence.
Doug & Ben Educate Scientists and Researchers
Ben Morris, who has SMA Type 2, and his dad, Doug, went to Switzerland to talk to scientists and researchers about the impact SMA has on their lives.
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Ben Transitions to Secondary School
Moving to secondary school - how to make it work well.
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Mary & Paul - Supportive Grandparents
Mary and Paul's grandson Karl has SMA Type 2
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Martin - Taking Part in a Clinical Trial
Martin was 11 when he joined the Trophos Clinical Trial
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Sam & Alex Have Spinal Surgery
A parent's perspective.
Bobby's Early Years with SMA Type 3
Bobby has SMA Type 3. His mum, Ally, shares the story of their SMA journey here.
