Parents & Grandparents of Children who have SMA Type 2 or 3

Kym and Rayne

Kym and Rayne

Kym shares her experiences following receiving her son, Rayne's, diagnosis of SMA Type 2.

Cure SMA 2019 Report from Hassan Sobati

Cure SMA 2019 Report from Hassan Sobati

SMA UK Trustee and parent, Hassan, has written this report following the Cure SMA 2019 Conference.

Chris and Alex

Chris and Alex

David shares his reflections here of the close relationship between his sons Chris (who has SMA Type 3) and Alex (who doesn’t have SMA) and what it was like for them while growing up.

Elsie And Her Wizzybug

Elsie And Her Wizzybug

Elsie will be receiving a Wizzybug in January. Her parents talk here about how it will increase Elsie's independence.

Doug & Ben Educate Scientists and Researchers

Doug & Ben Educate Scientists and Researchers

Ben Morris, who has SMA Type 2, and his dad, Doug, went to Switzerland to talk to scientists and researchers about the impact SMA has on their lives.

Ben Transitions to Secondary School

Ben Transitions to Secondary School

Moving to secondary school - how to make it work well.

Mary & Paul - Supportive Grandparents

Mary & Paul - Supportive Grandparents

Mary and Paul's grandson Karl has SMA Type 2

Martin - Taking Part in a Clinical Trial

Martin - Taking Part in a Clinical Trial

Martin was 11 when he joined the Trophos Clinical Trial

Sam & Alex Have Spinal Surgery

Sam & Alex Have Spinal Surgery

A parent's perspective.

Bobby's Early Years with SMA Type 3

Bobby's Early Years with SMA Type 3

Bobby has SMA Type 3. His mum, Ally, shares the story of their SMA journey here.