Resources for Professionals
We hope that some of the resources and services we can offer you will be useful. If you have any questions, please don't hesitate to pick up the phone (01789 267520) or email firstname.lastname@example.org If we can't answer directly, we'll try to signpost you to someone who can.
These are particularly helpful if you are new to SMA. They cover a range of information, starting from 'What Is SMA?' to guides for those who have had a recent diagnosis.
We support families with children and young people who have SMA, adults who have SMA, and those bereaved by SMA, by email, phone, text and outreach home-visiting.
If you haven't already found this area of our website, it aims to provide information and links on a whole range of topics. It is based on knowledge and advice from the SMA Community and SMA UK's Support Services Team.
This information sheet is written for health, education and social care professionals who have no, or limited, knowledge of SMA.
We can share with you what has worked well for other individuals and families, and put questions out to the Community about what they use and how they manage. We can tell you about possible sources of funding which may include help from SMA UK.
We can link people up with others also affected by SMA. There are various ways this can happen.
Finding the right words to explain this complex condition can be challenging. Our resources may help.
Available free of charge in the UK, these are suitable for infants up to 12 months of age. If a child is older, we may be able to help parents / carers access other suitable toys.
We don't provide this but suggest you contact our partner Muscular Dystrophy UK to see what they can offer via their various health professionals networks.
We can let you know about all the latest news via our monthly E-newsletter which covers what's happening in the SMA Community.