SMA Community Chats - Recordings

Please open these recorded discussions through YouTube if you would like to be able to watch a specific section.  Time codes are available in the YouTube description, giving you the option to go directly to the part of the interview that is of most interest to you.

Our thanks to Biogen for sponsoring our digital training in May 2021 to assist with producing these recordings and providing useful guidance for our participants.

Sex & Relationships

Recorded January 2021

SMA UK hosts Josh Wintersgill, Martyn Sibley and Molly Carnan discuss Sex & Relationships:

The Usefulness of Tech
Recorded December 2020

SMA UK hosts Emma Vogelmann and Julian Fiorentini discuss all things tech related. 

PARENTS! Ask us anything

Recorded November 2020

SMA UK hosts Josh Wintersgill and Jordanne Wozencroft, two young adults who have SMA, answer your questions and share their experiences of growing up and living with SMA. 

Having SMA and Becoming a Parent

Recorded November 2020

SMA UK hosts Becca Torricelli, Molly Carnan and Julian Fiorentini talk about disability and parenting, sharing their own stories. 

Getting the Most from your Personal Budget

Recorded October 2020

SMA UK hosts Emma Vogelmann, Becca Torricelli and Jack Hassan give you an insight in to how they manage their budgets and offer some helpful advice on personal health budgets and personal budgets for social care. 

Workplace Skills

Recorded September 2020

SMA UK hosts Emma Vogelmann and Jack Hassan lead our first 'Living With SMA' discussion around Workplace Skills. Emma and Jack discuss moving to self-employment, graduate schemes, finding accommodation, working from home, the impact of COVID-19 and much more...

Preparing for University

Recorded October 2020

SMA UK hosts Josh Wintersgill, Emma Vogelmann and Becca Torricelli talk about Preparing for University. Some of the areas we cover in this episode include:

- How we picked the right university
- Accomodation and care
- The pros and cons of living at university vs commuting
- Disability Students Allowance
‚Äč- General experience of being a disabled student