SMA-Focused Advice from Leading UK Neuromuscular Experts

Pages in this section last reviewed /updated: 23rd September 2021

The guidance in the two links below is checked by neuromuscular clinical experts from the adult and children’s clinical networks. We are immensely grateful to these clinicians for responding to the Community’s questions on top of the very stressful, caring roles they continue to fulfil.

This information is not intended to replace that provided by your / your child's healthcare team. If you have questions relating to your / your child's personal healthcare or treatment, please contact your own specialist neuromuscular service. 

Risk and Vulnerability

Covid-19 Vaccines

SMA-Specific information to have at hand 

  • If you or your child are on nusinersen treatment, you will find the latest information on this page. You may find it helpful to watch our webinars about virtual assessments and coming to clinic.  
  • The British Paediatric Neurology Association (BPNA) has developed a guidance document for paediatric neurology services about the management of paediatric neurology patients during the coronavirus pandemic
  • The Association of British Neurologists (ABN) have published detailed Guidance on COVID-19 for people with neurological conditions, their doctors and carers here
  • If you have questions about health and social care packages and how these may be impacted, go here.

Action taking place to address concerns about NHS and Social Care Covid-19 Policies

We are regularly updating these pages. We, and other patient groups, are streamlining the queries that clinicians are getting to help them juggle requests for information with the enormous task of providing care to patients. 

If you have a question, please email: