Our thanks to all who have shared their personal experiences.
If you would like to write for these pages, please do get in touch here.
Shared since 2011, parents whose babies didn't access drug treatment reflect on their experiences.
Equipment, education and spinal surgery are some of the topics discussed.
College, university, degrees and PhDs - some of the choices people have made.
Sport, driving, travel to name a few of the experiences described here by children, young people, adults and families.
Work experience, school, hobbies and life in general.
Living independently, working, travelling, looking back on life to date.
The journeys that have led to this new chapter of life.
Families talk about their experiences of getting a diagnosis and caring for their child.
You can read families' experiences of grief and how they cope with bereavement, as well as people's personal tributes and memories of those they love.
We are keen to hear from anyone who would like to contribute their experiences to these pages.