Speaking Up For SMA
Ross, who has SMA and writes a regular blog, has been doing a lot in the media recently which you can find out more about here.
In this report for BBC Wiltshire, Ben, who has SMA Type 2, discusses the big plastic debate and how alternatives to plastic straws aren't necessarily practical options for him.
On the 8th May, some members of SMA UK's Young Adult Network were pleased to attend a reception at the House of Commons, organised by Trailblazers from MDUK, on the Employability of Disabled People.
Here, Liz describes her experiences of being a patient representative at three NICE committee meetings considering whether to recommend access to nusinersen in England.