Speaking Up For SMA

"Do Disabled People Draw The Short Straw?"

In this report for BBC Wiltshire, Ben, who has SMA Type 2, discusses the big plastic debate and how alternatives to plastic straws aren't necessarily practical options for him.

Members of The Young Adult Network Visit Parliament

Members of The Young Adult Network Visit Parliament

On the 8th May, some members of SMA UK's Young Adult Network were pleased to attend a reception at the House of Commons, organised by Trailblazers from MDUK, on the Employability of Disabled People.

Liz - Sharing Experiences

Liz - Sharing Experiences

Here, Liz describes her experiences of being a patient representative at three NICE committee meetings considering whether to recommend access to nusinersen in England.