Speaking Up For SMA, Campaigns, Consultations & Awareness
If you’ve seen a consultation, campaign, survey or petition that you think would be of interest to others in the SMA Community, please email email@example.com
We may be working on a topic ourselves or have been asked to let the SMA Community know about a consultation, campaign, survey or petition that may be of interest. See what's active here.
We are always pleased to help to connect researchers with the SMA Community. That said, the Community can at times be inundated with requests. Bearing this in mind, please make sure to provide us with all the information we will need.
There's nothing more powerful than people affected by a condition speaking up about what it's like and what the impact of a potential decision will mean for them and the SMA Community.
You can find: notices for awareness events coming up; reports on previous years events, such as UK SMA Awareness Day and Rare Disease Day, and disability awareness-raising resources.