Spinal Muscular Atrophy with Respiratory Distress 1 (SMARD1)

Spinal Muscular Atrophy with Respiratory Distress 1 (SMARD1)

Spinal Muscular Atrophy with Respiratory Distress 1 (SMARD1)

This is a childhood onset form of SMA. This information, for if your child has recently been diagnosed, tells you more about its causes, symptoms and diagnosis, about looking after your child and who will be there to support you.

SMARD1 Voices

SMARD1 Voices

Our thanks to the families affected by SMARD1 who have shared their very personal experiences of caring for their children.