Standards of Care, Clinical Care, & Rarer Forms Research
These were updated and published in November 2017 following an extensive review of practice and research.
Clinical practice is constantly being reviewed and developed. Dr Alex Murphy, our Clinical Care Research Correspondent, reviews areas of care and practice.
Our Research Correspondents report on the available, but limited, research on rarer forms of SMA.
As well as developing drug treatments and clinical care, there is ongoing research into other aspects of SMA which you can read about here.