Community Networks & Voices

Browse here for different ways to connect with others in the SMA Community, hear from health professionals and find UK events that may be of interest. 

All Podcasts & Videos

All Podcasts & Videos

Community conversations and discussions on all sorts of topics and updates from healthcare professionals.

Our Community Voices - Podcasts, Videos & Stories

Our Community Voices - Podcasts, Videos & Stories

Wide ranging experiences and thoughts - teenage reflections, being a parent who has SMA, out and about, leisure, work and more.

Adults' Network

Adults' Network

A Facebook group where adults who have SMA share questions and experiences on all aspects of life.

Young Adults' Network (ages 18-25)

Young Adults' Network (ages 18-25)

All willing to talk about their experiences and share their tips and ideas with teenagers and / or parents who may have questions.

Community Questions Network

Community Questions Network

People who have SMA, parents, partners, grandparents and others keen to share what's worked for them, their tips and ideas.

Face-to-Face Events

Face-to-Face Events

Following our Picnic In The Park 2022 events, we don't currently have any future events planned. We will post here, and on our social media platforms, when we do release details for any future events.

Living With SMA

Living With SMA

This area of our website offers wide ranging information and ideas, many of which come from the SMA Community.

Equipment Exhibitions, Sport & Other Events

Equipment Exhibitions, Sport & Other Events

Scroll through our calendar to see what’s happening across the UK throughout the year.

Other Community Groups & Services

Other Community Groups & Services

There are many groups and services set up by and for people in the SMA Community. You can find contact details for some of them here.

Get In Touch and / or Join Up

Get In Touch and / or Join Up

For tips and ideas from the SMA Community, or to join one of the Community Networks and read our volunteering and network guidelines.