Connect With Others
Browse here for different ways to connect with others in the SMA Community. Whatever you choose, keep safe and well - our guidelines are here to help.
Everyone on here either has SMA themselves, or is a parent, partner, grandparent or professional, and is keen to share what's worked for them, their tips and ideas.
A Facebook group where adults who have SMA share questions and experiences on all aspects of life.
All willing to talk about their experiences and share their tips and ideas with teenagers and / or parents who may have questions.
Conversations with and between people from the Community and healthcare professionals about all sorts of topics. Take a look!
Currently on hold due to Covid-19, you can read about some of the previous information and social events we've held. We hope they will be back in 2022!
From teenage reflections, to being a parent who has SMA, to hearing about animal companions, you can find a whole range of experiences and thoughts here.
If you're wondering about an aspect of life with SMA, this area of our website offers useful information and ideas, many of which come from the SMA Community.
There are many groups and services set up by and for people in the SMA Community. You can find contact details for some of them here.
Get in touch for tips and ideas from the SMA Community, or join one of the Community Networks. You can also read our volunteering and network guidelines.