Community Networks & Voices
Browse here for different ways to connect with others in the SMA Community, hear from health professionals and find UK events that may be of interest.
Community conversations and discussions on all sorts of topics and updates from healthcare professionals.
Wide ranging experiences and thoughts - teenage reflections, being a parent who has SMA, out and about, leisure, work and more.
A Facebook group where adults who have SMA share questions and experiences on all aspects of life.
All willing to talk about their experiences and share their tips and ideas with teenagers and / or parents who may have questions.
People who have SMA, parents, partners, grandparents and others keen to share what's worked for them, their tips and ideas.
Following our Picnic In The Park 2022 events, we don't currently have any future events planned. We will post here, and on our social media platforms, when we do release details for any future events.
This area of our website offers wide ranging information and ideas, many of which come from the SMA Community.
Scroll through our calendar to see what’s happening across the UK throughout the year.
There are many groups and services set up by and for people in the SMA Community. You can find contact details for some of them here.
For tips and ideas from the SMA Community, or to join one of the Community Networks and read our volunteering and network guidelines.