Connect With Others

Browse here for different ways to connect with others in the SMA Community. Whatever you choose, keep safe and well - our guidelines are here to help.

Community Questions Network

Community Questions Network

Everyone on here either has SMA themselves, or is a parent, partner, grandparent or professional, and is keen to share what's worked for them, their tips and ideas.

Adults' Network

Adults' Network

A Facebook group where adults who have SMA share questions and experiences on all aspects of life.

Young Adults' Network (ages 18-25)

Young Adults' Network (ages 18-25)

All willing to talk about their experiences and share their tips and ideas with teenagers and / or parents who may have questions.

Living With SMA - Podcast & Videos

Living With SMA - Podcast & Videos

Conversations with and between people from the Community and healthcare professionals about all sorts of topics. Take a look!

Face-to-Face Events

Face-to-Face Events

Currently on hold due to Covid-19, you can read about some of the previous information and social events we've held. We hope they will be back in 2022!

Community Voices

Community Voices

From teenage reflections, to being a parent who has SMA, to hearing about animal companions, you can find a whole range of experiences and thoughts here.

Living With SMA

Living With SMA

If you're wondering about an aspect of life with SMA, this area of our website offers useful information and ideas, many of which come from the SMA Community.

Other Community Groups & Services

Other Community Groups & Services

There are many groups and services set up by and for people in the SMA Community. You can find contact details for some of them here.

Get In Touch and / or Join Up

Get In Touch and / or Join Up

Get in touch for tips and ideas from the SMA Community, or join one of the Community Networks. You can also read our volunteering and network guidelines.