Sam and Alex are twin brothers who both have SMA Type 2. Here, they tell you a bit more about themselves, as well as what they get up to day-to-day and on their YouTube channel and Instagram account.
Luke, aged 15, did a week’s work experience at a police station in Gloucester and spoke to SMA Support UK about how it went.
Mia watched a video talk by Stella Young. It got her thinking and prompted the 14-year-old to share her own thoughts and reflections with us.
In 2010, as part of it's 25th Anniversary celebrations, The Jennifer Trust (now SMA UK) talked with young people and young adults about their experiences.
Ben Morris, who has SMA Type 2, and his Dad, Doug, went to Switzerland to talk to scientists and researchers about the impact SMA has on their lives.