The Support & Outreach Service

We have a small, experienced Support Services team who offer a UK wide service for anyone affected by SMA. We can be in contact by email, phone, text or virtual meeting (e.g. zoom) and, when we have capacity, may be able to home visit.

If you or your child have had a recent diagnosis, we’re here and can offer emotional support, practical advice and guidance. We don’t provide a medical service or medical advice, this must come from your clinical team. 

If you’re making applications for benefits or presenting your case for a health and social care package, an Education and Healthcare Plan (EHP) or Personal Independence Payment (PIP), we can talk you through how to present your case.

We’re able to listen if you’re facing choices, for example which school or university to apply to for a place and help you to clarify what additional questions you need to ask.

Please do get in touch if you're wanting support. Though we don’t have all the answers, we do know of many other specialist organisations and services that may be able to help and can also signpost you to them.

Contact Us or Phone 01789 267520