Trevor Worth and Matt Begley Husky Trail

Trevor very sadly lost his niece, Abigail, at six months of age to SMA Type I. Both he and his friend, Matt, wanted to give back to SMA Support UK during what was such a devastating time for Trevor’s family.

In April, Trevor and Matt sled 250km (155 miles) across Lapland in sub-zero temperatures with huskies. Before they set off, Trevor and Matt shared their stories as to why they were taking part in such a fantastic challenge:

Trevor’s story

As I approached my 50th year I thought to myself, what ridiculous thing can I do that will totally put me so far out of my comfort zone, I will wish I had opted for a beach holiday instead?

Kilimanjaro, cycling across Egypt, white water rafting down the Zambezi all crossed my mind but in the end I opted for the freezing cold and opted for the Huskies! I know it will be extremely tough for me but as I’m doing this in memory of my beautiful niece Abigail who sadly passed away at just six months of age, that will keep me going. The effect it had upon my sister, brother in law, nephew and my mother is something I will never forget and if a fat old guy can help repay some of the support my family received at a devastating time, to help other families with the support they need, then that is the least I can do.

I am very fortunate to have my pal Matt travelling and enduring this with me and I am grateful for his support and amazing efforts in helping us raise over £10,000 for the charity. Lots of people talk a good deed, but he is doing it and his commitment has been unbelievable. A truly top man.

Matt’s Story

My reason for the trip is simply that Trevor asked me to go. In the past I have typically supported local charities such as hospices, kids groups and nationally RNLI and various cancer charities.

SMA Support is personal to Trevor and he is a true friend so here I am.

However, the more I learn about what you do and how you work, the more enthusiastic I have become. So what is driving me on now? Smaller charities, on the face of it struggle to raise funds. I tend to always back an underdog and love a ‘scrap.’

I actually find it easier to be enthusiastic about raising for you guys (as opposed to a larger organisation), since I have a belief that it means more to you as opposed to being a drop in the ocean into a larger charity. Getting emails from you is great and the fact that you send info out is something I have not experienced before.

It is fulfilling to be able to help folk who want to help others who haven’t been dealt the best of luck.