Upcoming Events

You will find details on all our Community Connections Events on this page.

SMA Social

Every two weeks, Martyn, Jordanne, Jack, Josh and Becca host a virtual social event on Zoom for adults who have SMA on a Sat evening at 8pm. 
 
This is a live, virtual event and is a safe space for people to come together, relax and have a good chat.  If you would like to join the SMA Social, all you need to is to sign up to Community Connections.  As soon as you have signed up, you will then automatically receive the log in details to join the next SMA Social.
 
We are meeting on the following dates this year:
  • Saturday 5th December
  • Saturday 19th December

Living with SMA

Each month we have different hosts from across the SMA Community coming together to discuss different topics.  The 'Living With SMA' episodes are available free, for everyone to listen to and watch through our website and social media channels. 

This is great place to find
 useful tips, recommendations, and hear personal stories. You also have an opportunity to ask us questions in advance.

September 2020

Workplace Skills - Friday 25th September
Emma Vogelmann & Jack Hassan talk about their own experience of the workplace and answer your questions. Watch it here.

October 2020

Preparing for University - Friday 2nd October
SMA UK hosts Josh Wintersgill, Emma Vogelmann and Becca Torricelli talk about Preparing for University. Watch it here.

Getting the Most from your Personal Budget - Friday 16th October
Becca Torricelli and Jack Hassan will be giving you an insight in to how they manage their budgets and offering some helpful advice on personal health budgets and personal budgets for social care. 
Watch it here.

November 2020

Having SMA & Becoming a Parent - Friday 6th November
Molly Carnan & Julian Fiorentini talk about disability and parenting, sharing their own stories and answering your questions.
Watch it here.

PARENTS! Ask us anything? -  Monday 23rd November
Parents, please come and join Jordanne Wozencroft and Joshua Wintersgill, two young adults who have SMA would very much like to answer your questions and share their experiences of growing up and living with SMA.
Watch it here.

December 2020

The Usefulness of Tech - Friday 4th December
Julian Fiorentini will be discussing all things tech related, including how to get your home set up right and sharing some useful tips.

Getting Involved with Sport - Friday 18th December
Josh Wintersgill is on the Great Britain Air Rifle Talent and Development Squad and will be talking about why he loves this sport and how you can get involved.
If you would like to ask Josh any questions, please email us at: connections@smauk.org.uk

Health and Wellbeing

Our Health and Wellbeing virtual webinars and talks are all hosted by healthcare professionals, to provide you with the latest advice and information from across the UK.  

Following a succesful first series of webinars discussing access to nusinersen and virtual assessements, our second series will begin very soon and will be advertised here.

Watch webinars that have already taken place