Upcoming Events

You will find details on all our Community Connections Events on this page.

SMA Social

Once a month, Martyn, Jordanne, Jack, Josh and Becca host a virtual social event on Zoom for adults who have SMA on a Sat evening at 8pm. 
 
This is a live, virtual event and is a safe space for people to come together, relax and have a good chat.  If you would like to join the SMA Social please register here.  After registering, you will receive a confirmation email containing inforamtion about joining the SMA Social event on Zoom.
 
Our next SMA Social will be taking place on:
  • Saturday 13th March 
  • Saturday 10th April

Living with SMA Recordings

Throughout this COVID-19 pandemic, hosts from across the SMA Community have come together to discuss a variety of topics.  The 'Living With SMA' recordings are available free, for everyone to listen to and watch through our website and YouTube channel.

Workplace Skills:
Emma Vogelmann & Jack Hassan talk about their own experience of the workplace and answer your questions. Watch it here.

Preparing for University: 
SMA UK hosts Josh Wintersgill, Emma Vogelmann and Becca Torricelli talk about Preparing for University. Watch it here.

Getting the Most from your Personal Budget: 
Becca Torricelli and Jack Hassan will be giving you an insight in to how they manage their budgets and offering some helpful advice on personal health budgets and personal budgets for social care. 
Watch it here.

Having SMA & Becoming a Parent: 
Molly Carnan & Julian Fiorentini talk about disability and parenting, sharing their own stories and answering your questions.
Watch it here.

PARENTS! Ask us anything? 
Parents, please come and join Jordanne Wozencroft and Joshua Wintersgill, two young adults who have SMA would very much like to answer your questions and share their experiences of growing up and living with SMA.
Watch it here.

The Usefulness of Tech: 
Julian Fiorentini will be discussing all things tech related, including how to get your home set up right and sharing some useful tips. 
Watch it here.

Sex & Relationships: 
Josh Wintersgill, Martyn Sibley and Molly Carnan discuss Sex & Relationships.
Watch it here.

Bimonthly Webinars

Our virtual webinars and talks are all hosted by healthcare professionals, to provide you with the latest advice and information from across the UK.  

Following a succesful first series of webinars discussing access to nusinersen and virtual assessements, our plan in Spring 2021 is to deliver bimonthly webinars with updates on research and access to treatments. 

Watch webinars that have already taken place