Wales and Northern Ireland – Access to Nusinersen

Wales and Northern Ireland follow NICE guidance for England. There is a Managed Access Agreement (MAA) in place.

Read more about who may access treatment and answers to other questions: Access in England >

We have been advised that children may be referred to:

Our summary guide discussing all the potential treatments may be useful: Drug Treatments for Children who have 5qSMA.

Adults may be referred to:

Our summary guide discussing all the potential treatments may be useful: Drug Treatments for Adults who have 5qSMA.

Children are treated at:

Our summary guide discussing all the potential treatments may be useful: Drug Treatments for Children who have 5qSMA.

Adults are treated at:

There is no service at the moment, but we understand no one is waiting. If a service were needed it would be based at Belfast City Hospital.

Our summary guide discussing all the potential treatments may be useful: Drug Treatments for Adults who have 5qSMA.