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Last updated: April 2024

Suggested by members of the SMA Community.  All are independent of SMA UK. Please make contact directly to decide if they are right for you. For medical advice, always contact your clinical team.

Online Communities

DHorizons Tribe


SMAma’s Facebook Group

SMArteens Facebook Group

SMAII Talk Facebook Group

SMA Bereavement Support Group

Spinal Muscular Atrophy Northern Ireland Facebook Group


Blogs and Podcasts

The Wheelchair Activist podcast

Ross: A life on wheels

Martyn Sibley


Disability Horizons

SMA News Today

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