We are SMA UK
We are SMA UK
Supporting, Informing, Advocating.
We’re committed to supporting everyone affected by SMA so that they have access to the best care, support and treatment and there will be no barriers preventing full inclusion in society.
Everyone affected by SMA will have access to the best care, support and treatment and there will be no barriers preventing full inclusion in society.
We will work tirelessly to raise awareness of SMA, to be a leading advocate for individuals and families and to ensure timely access to diagnosis, effective treatment and best management for all affected by SMA.
We will listen to and support our community to make informed choices and will bring together skills, knowledge and resources in the UK and beyond, in our quest to optimise the future lives of all affected by SMA.
SMA UK produces reliable, timely information on SMA for the SMA Community as well as health care professionals, education providers and the general public.
We provide personalised practical and emotional support services for all those affected by SMA.
We advocate on behalf of the SMA Community to authorities that regulate access to drug treatments, care and services and campaigning on issues that matter to people affected by SMA.
We fund and support research into the clinical development of drug treatments that understand the complexities of SMA and the underlying disease mechanisms and improvements in the clinical care and management of people affected by SMA.