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Just a few of our wonderful supporters who have been fundraising for SMA UK have shared their stories to help inspire you!

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Family smash target with 3 peaks in 24 hours

Over the August Bank Holiday weekend, Frazer Lloyd and 30 of his friends and family, began their mission to smash their target of completing the UK Three Peaks Challenge in just 24 hours. The group managed to climb Ben Nevis, Scaffell Pike & Snowdon in an incredible 23 hours & 50 minutes and were joined by even more supporters for the final climb.

Not only did they complete this mammoth challenge in an unbelievable time, they also held a fun day on the Sunday – with bouncy castles, face painting and games for the kids, followed by live music from a DJ, a raffle and an auction in the evening!

Their mission was to raise funds and awareness of SMA and they were inspired by Frazer and Leah’s nine-month old son, Frank, who has SMA Type 1. They were able to donate an incredible total of over £5,000 to SMA UK from their fundraising and we are very grateful for their support.

Sharon Darbyshire

Sharon’s Ultimate Trio Challenge

Sharon completed three trekking challenges during 2023 in memory of her son Christian, who passed away in 2004. The family had already raised an incredible amount through Christian’s Angel Fund over the years and Sharon added over £5,000 to this by completing an ‘Ultimate Trio’ of the Three Peaks, 24 Peaks and the Inca Trail!

Three cyclists in SMA UK tops at the Lands End sign

Land’s End to John O’Groats Cycle

Ian, Paul & Neil took on the huge challenge to ride from Lands End to John O’Groats. They decided to fundraise for SMA UK because they have a personal link; Ian and Jane lost their son Ben to Type 1 SMA 25 years ago, so they know that any amount donated will make a massive difference. They completed the challenge after a gruelling eleven days and raised an incredible total of over £10,000!

One year old girl with SMA with a party background

Having a Ball for Sienna

Sienna has SMA Type one her family organised a Ball in May 2023 to raise funds for SMA UK. They raised an amazing £4,000!

Sienna’s Mum Sian says “It will be 1 year since our little girl was diagnosed with SMA type 1. We want the day to be positive each year, not negative and some funds for SMA UK as a thank you for everything they do for families and those with Spinal Muscular Atrophy.”