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UK Regional (Specialist) Neuromuscular Centres (RNMCs) Providing Treatment

This lists the RNMCs for adults and children across the UK.

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Drug treatments for children who have 5q SMA – England, Wales & Northern Ireland

This page is for parents whose child has been diagnosed with 5q SMA. It answers questions about possible drug treatments.

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Drug treatments for children who have 5q SMA – Scotland

This page is for parents whose child has been diagnosed with 5q SMA. It answers questions about possible drug treatments.

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Drug treatments for adults who have 5q SMA

These pages answer questions you may have and are considering the possibility of a drug treatment.

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Treatment & Care Webinars with Experts

Leading experts talk to the Community about latest developments.

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Information for people living overseas

Q&As for people living overseas who may want information, including around access to treatment.